I’ve mentioned Pink BENIN and the work we do briefly here, in emails, and on Twitter, but I haven’t really gone into a lot of detail about what’s become a huge part of my life.
How Pink BENIN got started
About six months ago, a Beninese friend of ours came back from a trip to France and told us she’d gone to remove several lumps from her breasts, and to undergo treatment for breast cancer. This woman is a woman of means and education. She studied in both France and the United States, and is persuing a successful second career as a banker. Her first, as a journalist, was equally successful. All this to say that she is rather atypical of Beninese women in that she has access to wealth and knowledge.
After finding a lump, she approached her family doctor, who told her that, while she could have the lump removed in country, he didn’t really know where to send her for further treatment. X-Ray therapy? Chemo therapy? Can that even be done in West Africa? That was all beyond him. She combed the network of Beninese doctors until she was given recommendations for a doctor in Paris. The process was humiliating, time consuming, and frustrating. Upon her return, she annonced her intention to form Pink BENIN, a non-profit dedicated to helping women survive breast cancer.
We don’t want to cure breast cancer, just stop women from dying from it so bloody often
We want to inform women and doctors that breast cancer doesn’t have to be fatal. We want to teach women how to self examen. We want to dispurse social taboos about maladies that touch women and our sexuality. We want doctors and midwives to know what breast cancer is and where to send women when they find lumps. We want to lower the cost of surgery, and bring x-ray therapy to Benin. We want mammographs in major population centers outside of Cotonou, and we want women to use them anually. We want women to form support networks that encourage self testing and early screening. Most of all, we want to lower the cost of treatment so that women don’t have to die from beast cancer.
Sounds like a lot? Well, we’re ambitious, but we’re also working with smart doctors and health professionals to design programs and projects that do as much as we can with as little funding as possible. We have several models, and while none of them will completely cover our costs, we think we’ll be able to get buy without major gov’t funding for a little while.
What do I think of all this?
Personally, as an American who started out as a Peace Corps Volunteer and ended up emmigrating, it’s a very rewarding experience to work a group of dedicated men and women who aren’t counting on int’l aid to come in and save the day. I see it as the same “volunteering” I did back home; however, this time I sit on the board of directors.
We don’t have any staff (yet), so everyone pitches in where we’re needed. It’s very hard, but it’s also a lot of fun. I’m learning a lot. I wish I knew more about running a charity, running a non-profit, the public health sector, community organizing, and herding cats. While this sort of thing hasn’t yet been done in Benin, it *has* been done throughout the developed world. There are even models as close as the Ivory Coast!
We’re doing our best to learn as much as we can as fast as we can. It’s amazing the work we’ve already done (I’ll write some follow-up posts on that, I think). We’re all terribly worried about doing more harm than good, but we’re also worried about being paralyzed by worry.
If you’re interested in what we do, check out our website at pinkbenin.org.